I was born premature, in 7 months. No one thought I will be able to make, not family members or relatives. Perhaps with the thought that I will die soon, no one cared to come and bless me like they do to all other new born family members, not even the head of the family, my grandfather!!
But my parents didn’t want to give up! Creator left the space against my parent’s extreme level of care, will and love. I could survive!! But nature had its portion, I was left with poor intelligence and disoriented physical attributes. People were cynical; they laughed at me, use slothful words against my name. Hardly had anyone who could understand my cloven words or incomplete or rambling conversation.
I was alive!! There was nothing more my mother prayed for!! But her dedication and hard work is paid now…. Has now turned to her pride! Her little cripple, silly boy is now grown up, higher than her! Each time she hugs me, I see pride and flawless love for me! Fights against all barriers inside family, stand against all odds in society, my warrior mother could establish me in the society, now having the smile of winner.
There are thousands mother like her, who gave up their lives, struggle and fight each and every day to create a comfortable space for their child to survive in this harsh world. May be the child is cripple or disabled, but they believe in them, they believe one day this child can win the world and become a person resembling renown to scientist, painter, player or singer.
I have experienced that the children with neurological disabilities are often considered as ‘strange being’ and become subject to bullying and harassment. This negative environment influences parents, they are not comfortable having their children with disability seen in public places, also parents of typical/regular children have fear that their children may get affected if they study with students with these disabilities. The child with a disability is considered a curse to the family and a punishment from God; parents, thus, are, metaphorically “sinners”. I firmly believe that only a welfare government can ensure supportive lifestyle of people with disabilities.
‘Parents Forum for Differently Able’ is a voluntary organization formed by the parents to support children with neurological disabilities. This forum has been working as a platform to bring all parents under a common umbrella, networking, information sharing, sharing pain and concerns, counseling, awareness rising and create common bond of understanding and action among parents. It’s a voluntary social welfare organization formed, supported and managed by the parents. It has been advocating on behalf of these children and persons, to gain and protect their rights, so that they can have a life with dignity.